Uncategorized Jour 6. Dom et Mom the Bomb (aka la meilleur mère en monde) #PosiCuda #Defi30Jours Posted on May 11, 2014 by Dom Continue reading →
Uncategorized Santa always finds a way to spread some joy. Even during his summer job. Told every car to have a beautiful day! Posted on May 11, 2014 by kevin Continue reading →
Uncategorized #PosiCuda#defijour6 ma maman manque sniiiif ma mère c’est ma référence, ma grande soeur , la prunelle de mes yeux je la souhaite une bonne fête des mère et une longue vie. Une pensée pour ceux qui ont perdue leur maman …….,, Posted on May 11, 2014 by khadija(ziza) Continue reading →
Uncategorized At 36 I was a normal healthy and happy guy. I had a rewarding career as a teacher, happily married with a house and was looking forward to my future. Then out of nowhere I began to make sounds with my throat. This was the beginning of my problems. Over the next 3 years I started to fidget and tic more and developed problems swallowing my food and my speech became harder and harder to understand. I don’t remember how many doctors I visited and tests I did without results. Tourette’s was ruled out as I did not have it growing up. I was a medical mystery. Fast forward 4 years later. I am divorced, not able to work, on disability and living with my parents. I have been diagnosed with a very rare degenerative disorder called NEUROACANTHOCYTOSIS or NA for short. It’s honestly a relief to know what I have. After researching NA I was astounded to read that I was 1 of only about 150 people in the world to have it. My symptoms include vocal tics, biting of my tongue, extreme fidgeting and weight loss as well as problems with my speech, walking and swallowing. The hardest part was having to tell my mom and dad about NA and that my expected life span is 10-20 years. People may find this hard to believe but I view my disorder as a blessing. I now live life to the fullest and enjoy the simple things like eating an amazing dessert and being able to sit through a whole movie!! My life now has purpose and meaning…to bring joy and happiness to all my friends and family and make them smile. Sure I have down days but because of all the love and support of my friends and family I am usually smiling and happy. I consider myself to be lucky. I’m not in pain (my tongue biting has disappeared) and due to medication I am not as fidgety and gaining back my weight. I can even sit through a 3 hr movie!! My biggest concern is my eating. Specifically my swallowing problem. I make quite a mess when I eat but thanks to my amazing mom and all my new friends at the local Boston Pizza I can go out and socialize. This is very important to me and not something I take for granted. I have joined an NA support group and become good friends with people from all over the globe who have been affected by this ugly disorder. Many of them have bothers and husbands with NA who have it worse than I…very little support and are either not physically able to or too embarrassed to eat out in public. How sad!!! I am truly blessed!! I am an average guy with a positive attitude and just trying to educate all about NEUROACANTHOCYTOSIS SMILE AND LIVE!!!!!! Posted on May 11, 2014 by Mike Continue reading →
Uncategorized This is my story. I want to educate people about my disorder and inspire all to LIVE LIFE!!!! Posted on May 11, 2014 by Mike Continue reading →
Uncategorized Je pense que beaucoup de personnes pensent qu’ils not là meilleure mère au monde… Mais évidement il peut seulement y avoir une “la meilleure.” Et je crois que la mienne prends le titre. Joyeux fête des mères, Maman. Je t’aime pour toujours. #defijour6 #PosiCuda Posted on May 11, 2014 by Chlöe Continue reading →
Uncategorized It is important to understand that any one of us can make a positive difference in the world, and that dreams are meant to be, and must be lived; not slept through. Posted on May 11, 2014 by Kendall Continue reading →
