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Me and a BP Kenaston regular named Mike Koutis. Mike has an extremely rare neuro-degenerate disorder that only about 150 people in the world have. It’s called Neurocanthocytosis. The symptoms include involuntary body movements or “ticks” every second as well as difficulty swallowing, chewing the tongue and many more. So Mike would come in when I first started working here and he would be constantly ticking and I was never sure why. When Mike decided to open up his story to me sitting at the bar one day I was sincerely touched. His mind is still all there, he’s very sharp and 3 years ago he was completely normal and a teacher. Now he had to go on disability which is 700$ a month as a result mike moved back in with his parents. The life expectancy of this illness is 10-15 years. BUT Mike will be the first to remind you that every day he gets the chance to be Positive and Grateful to be alive and you couldn’t count the amount of times Mike says thank you. I was so happy Mike shared his story with me, and now I buy Mike’s dinner when I get the chance to see him. By NO means is this a charity case, Mike can easily Pay for himself. But I have the opportunity to work and to make money while unfortunately he doesn’t. He makes me CDs and brings them in for me. It’s always so refreshing serving Mike for his outlook on life regardless of his mental and physical state. I’m glad that we are building a friendship. Here’s a message he wrote me on Facebook.

Posted on by Jay
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